Treatments
The Dutch healthcare system is fairly well developed. However, if you are a Tietze or costochondritis patient and once diagnosed, it may turn out that little is known about the condition. Sometimes what knowledge there is is hard to find or fragmented. Primary care physicians do not always make the link to rheumatoid arthritis and therefore do not refer patients to the rheumatologist. One may receive the comments, “Learn to live with it” or “just take a pill for the pain.” This can leave the patient feeling not taken seriously and abandoned. What also makes it difficult is that often after a few weeks the pain diminishes and even often goes away completely but can return after a few weeks. Patients then often do not go back to the doctor because nothing can be done about it anyway.
Making a diagnosis of Tietze can help the patient, but of course that does not end the doctor’s role. The patient may know what is wrong with him, but the general practitioner is not a specialist and generally knows little about the clinical picture. Normally, general practitioners have an accompanying and, in many cases, a coordinating role in chronic and infrequent or rare diseases, such as Tietze and costochondritis. This goes beyond simply making the diagnosis. Listening carefully, taking the symptoms seriously and referring the patient, where necessary, to the specialist or pain clinic is already a good start.
In addition to the clinical picture, Tietze’s syndrome often causes a lot of anxiety and stress. This is because Tietze is often confused with heart disease. Therefore, it is important to reassure the patient, clearly explain what Tietze is, and refer as necessary to rule out other ailments.
Optimal relationships and golden rules
Tips for an optimal relationship with your general practitioner
- When talking, ask how the family doctor thinks about things like alternative medicine or prescribing medication.
- Before a visit to the family doctor, write down your questions. This serves as a reminder during the conversation and a check afterwards.
- Be open. Say what you think, feel and want. Dare to ask for more information if something is unclear.
- Also say it if you don’t feel taken seriously or are dissatisfied with the treatment.
- Express any fears and doubts you may have. When you are back home, it is too late.
- At the end of the visit, repeat the information given to make sure you understood everything.
- If a leaflet exists, ask for it.
- Do not hesitate to ask for a second opinion in an important situation. After all, it is your body and your health.
A patient may trust his (family) physician to:
- Always receive and examine him with acute chest pain complaints.
- Take his complaints seriously, even if the cause is not immediately known.
- Know thatpain is not made up.
- Understand that pain is as bad as the patient experiences it.
- Explain well to him what the condition that has been diagnosed means.
- Not send him out the door with the message “learn to live with it”.
- Refer him to any patient information.
- When appropriate, refer him to a center for treatment of chronic pain.
- Take into account that people with chronic pain often need more or different medication.
- Trust and act in accordance with common clinical sense.
- Understand that despite everything, the patient can look well cared for and even smile and have fun.
- See himself as a good link between the practitioner and the patient He will work with the patient to find a solution.
- Always keep him informed of test results.
- Always invite him to contact him if the symptoms persist.
- Always be willing to review the situation.
- Prescribe a painkiller in case of diagnostic doubt (except in case of allergy).
- Treat him as he would like to be treated.
Various treatment options
Fascia therapy F.I.T. for Tietze syndrome
Tietze syndrome is often labeled as “misunderstood symptoms” both in the medical world (general practitioner and hospital) and in the paramedical world (physical therapist, exercise therapist, etc.). The complaints experienced by patients with Tietze’s syndrome can fortunately recover spontaneously in many cases within a few weeks or months. However, those with long-term complaints (sometimes even increasing) have often seen several doctors and specialists, often without much success. Experience shows that together with a Fasciatherapist you can make quite an impact on your pattern of symptoms, even to full recovery.

The techniques used during Fasciatherapy F.I.T. are not or barely painful and consist mostly of heat therapy, trigger point treatment and gentle massage-like techniques. Actually, all the techniques used have the same goal, which is to make the fascia supple and mobile, so that freedom of movement is normalized again, tension is reduced and drainage substances are removed from the tissue. In addition to the treatment performed by the Fascia Therapist, the possible causative and perpetuating factors are examined. Breathing pattern, mobility and resilience of the fascial system, psycho-emotional strain, diet, sleep quality and knowledge regarding pain are points of leverage to make a positive impact on your pattern of symptoms. Our experience is that in most cases the symptoms disappear or at least can be significantly reduced.
Fasciatherapy F.I.T. is a new form of treatment that falls within the domain of the physical therapist, treatments are declared as physical therapy. See www.fasciaweb.nl for more information about this form of treatment. If you are looking for a therapist in your area who is trained in the treatment of Tietze syndrome, please contact our secretary (info@fasciaweb.nl). At this time, the number of therapists is not very large, but we will soon provide continuing education so that there will be more therapists with sufficient knowledge of Tietze syndrome.
TENS device

The abbreviation TENS stands for Transcutaneous Electrical Nervous Stimulation. TENS works against pain in two ways:
- The TENS blocks the pain signal going to the brain. As a result, fewer pain impulses go to the brain.
- The body itself is prompted to produce substances that have an analgesic effect.
The degree of pain relief during treatment and the number of hours of pain relief after you stop treatment is different for everyone. Usually, over time, the pain relief effect increases.
The TENS device has a built-in, rechargeable Li-ion battery for long-term use. The device is connected by a cord to one, two or four electrodes, which are stuck to the skin. You can attach the device to a belt or other article of clothing through a clip, for example, so it need not be visible to others.
Infrared Thermomat Jade
This therapeutic far-infrared thermomat is specially made for relaxing lying on. Because jade stones are used, the infrared heat will work up to 12 cm deep into the body. Jade/Tourmaline and Geranium enhance the radiant heat. This Thermomat is recommended for people with fibromyalgia and other rheumatic complaints, back pain, tired and stuck muscles, people who want to burn extra calories, as a warm-up for yoga or the elderly among us who like to enjoy their freedom of movement.
Please note that there are some contraindications when using the mat. These are also listed with the product. Consider the following:
- Thermomat should not be used with rapidly growing malignant brain tumors or severe skin lesions
- In pregnancy and people with pacemakers, do not use above 42 degrees and no longer than 1 to 1½ hours at a time.
- Always supervise children and the very elderly.
- For specific complaints, always consult your doctor or specialist first.
This product is a health product and may contribute to your health, on the other hand it is not a medicine, substitute for medical treatment or medical advice. When in doubt, always consult with your physician.
Tips on exercise
Ten tips for exercise in Tietze’s syndrome and costochondritis
- The very first piece of advice is perhaps also immediately the most important: You don’t destroy anything in your body by moving. So try to keep moving despite the symptoms. Don’t let the fear of more pain or of breaking something lead you.
- Experience what works best for you personally by trying out different things and feeling your own limits. The most important thing is to choose something that suits you and what you like.
- Try to get half an hour of exercise every day, this can also be outside walking or cycling.
- When you have a lot of complaints or a bad day, you can take it a little slower than on the good days.If you have complaints, try to pay particular attention to mobility (keeping in motion) and relaxation.
- Strengthening the trunk muscles can help ensure that fewer symptoms are experienced. By strengthening the muscles of the abdomen, chest and back, you ensure better posture and your body is better able to accommodate itself properly on days when you are more bothered.Building strength with policy is good to do during periods when you are somewhat less bothered.
- Joints constantly work together and affect each other. A movement restriction in the back can cause chest complaints. So working on whole-body mobility is always good.
- Suitable sports are probably fitness, cycling and walking. Note that the most appropriate intensity is different for each person.
- Swimming and moving in warm water are often perceived as very pleasant, on the one hand because of the warmth and on the other hand because the water puts less pressure on the joints.
- Yoga comes in different forms (varying in intensity). Basically, it makes you more flexible and relaxed. It promotes a healthy functioning chest because it becomes more mobile. Attention is paid to good, calm breathing from the abdomen. With Tietze, this way of breathing can contribute to symptom reduction and more experienced calmness.
- During all forms of exercise in which you feel comfortable, the body produces endorphins. This substance has a pain-relieving effect and you will experience the symptoms as less intense and thus be less preoccupied with them.
Our association is a member of the ReumaNederland because Tietze syndrome is a rheuma-related condition. The ReumaNederland indicates that it is very important that you keep moving even if you have been diagnosed with Tietze’s syndrome.
Some tips on exercise from ReumaNederland
- Stay within your limits It is wise not to go beyond your limits when exercising. When the disease is calm, you can do more than when the disease is active. A physical or exercise therapist who is familiar with rheumatic complaints can advise you on suitable exercises and forms of exercise. There are many options: individual, group therapy, swimming, medical fitness and adapted sports.
- Sports Some advice about sports depends entirely on your personal situation. Usually, it is best to avoid contact sports and sports with great physical exertion or peak loads. More suitable are sports such as fitness, swimming, cycling and walking. In swimming, cycling and walking, you move evenly and your joints do not have to absorb large shocks. Swimming and exercising in heated water is a good way to exercise. In the water, your joints are not put under heavy strain. They are supported by the water. When cycling, you can protect your joints by cycling in a light gear and sitting up straight. A coaster brake can be more comfortable than hand brakes. Of course, there are other sports and activities you can think of that will help you improve your fitness. The important thing is to choose something that suits you and that you enjoy. You can seek advice from your physical therapist, exercise therapist or doctor.
- Exercising together You can also exercise in groups. Many rheumatic patient associations organize, in addition to so-called “dry” exercise groups, hydrotherapy groups in which you exercise in warm water under the guidance of a physical therapist. Often exercise in the water is combined with exercises on dry land. Experience shows that members of an exercise group find it easier to instill the discipline of regular exercise.
Source: www.ReumaNederland.nl
For more information, visit the website of ReumaNederland
Nutrition
It is well known that nutrition contributes positively to overall health. Nutrition can not only prevent diseases, but also has beneficial effects in many diseases. Nowadays, everyone has a different opinion about nutrition and what is healthy and what is not. This can lead to confusion. Therefore, in this article we provide some good guidelines that will give you the basis for putting together a healthy diet and advice specifically for patients with Tietze’s syndrome and/or costochondritis.
The Dietary Five

The “Guidelines for Good Nutrition” describes what foods are generally best for your body, and the Nutrition Center has translated these guidelines into the Disk of Five. The Disk of Five shows in five boxes an optimal combination of product groups that have a beneficial effect on your health and that together provide the nutrient requirements. These are the boxes 1) fruits and vegetables, 2) spread and prepared fats, 3) dairy, nuts, fish, legumes, meat and egg, 4) bread, grain products and potatoes and 5) beverages.
Box 1: Fruit and vegetables
Fruits and vegetables contain nutrients that lower the risk of cardiovascular disease, colon and lung cancer and type 2 diabetes. Eat at least 250 grams of vegetables and 2 servings of fruit (200 grams) per day.
Vak 2: Cooking and preparation fats
Fat is an important building block for the body and provides vitamins A, D and E, among others. Adult men and women need 65 and 40 grams of spread and prepared fats per day, respectively.
Box 3: Dairy, nuts, fish, legumes, meat and eggs
Eating more plants and less meat: this group is all about alternating between animal and plant products. For example, nuts can reduce the risk of cardiovascular disease. In addition, you also reduce the risk of colon cancer by consuming 2 to 3 servings of dairy a day.
Box 4: Bread, cereals and potatoes
Whole grain cereals play the leading role in this box, such as whole grain bread, oatmeal and brown rice. The risk of heart disease, type 2 diabetes and colon cancer is already reduced by eating 3 scoops of whole grain cereal products or 3 whole grain sandwiches a day.
Box 5: Beverages
Daily, the body needs 1.5 to 2 liters of fluid; most of it comes from this box. Your body needs fluids, but extra sugar? Definitely not. Therefore, in the Dietary Five you will find the thirst quenchers without calories: water, coffee and tea.
Members only
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Additional recommendations nutrition in Tietze’s syndrome and/or costochondritis
Nutrition plays an important role in life. After all, it is a basic need. Unfortunately, nutrition also affects our health. Earlier, we focused on nutrition. For example, we indicated that sugar and salt are not conducive to health. But there are certainly other foods that affect Tietze and/or costhochondritis because they actually trigger or cause irritation. These include eggplant, tomato, white potato, bell bell pepper, chili bell pepper, goji berry, pepino, cherry, pineapple cherry, cape gooseberry or goldberry and incaberry.
Avoid the “E-number” additives, especially E621.
Nutrients we can use extra are: Ginger, garlic, turmeric, cinnamon, cocoa with the highest cocoa value (bitter) 20 grams per day.
Recipe for delicious relaxation tea
- 1 teaspoon lemon balm
- 1 teaspoon sage
- 1 teaspoon lavender
- 1 teaspoon parsley
- 1 teaspoon fennel
- 1 teaspoon marigold
- 1 liter of water
- bring the water to a boil
- when water boils remove from heat and let stand for three minutes
- add the ingredients
- let it steep for ten minutes
- strain out ingredients.
Tietze and employment
Causes
There are several reasons why labor force participation is not optimal in many cases. In many cases, employers, supervisors and colleagues are unfamiliar with the condition. This can lead to problems in the workplace. In addition, unfamiliarity with the clinical picture and its consequences also plays a role among professionals and/or therapists who are involved. But people with a chronic disease or disability are also not always aware of the impact of the disease on work, the solutions that can be found and the rules and laws that are in place when things go wrong. Because of this unfamiliarity and possible prejudice, in many cases the conversation between the employee and the employer (and others) does not get started, or does not get off to a good start, and solutions to problems that arise in the workplace are not found.
Effects
People with a chronic condition or disability often end up on welfare, their business goes bankrupt, or they have agreed to a small UWV benefit because no solution could be found for maintaining employment with a disability. Work is necessary to improve the financial position, which also makes participating in society more possible.
Advice line
Are you dissatisfied with your family doctor or specialist, do you feel you are not taken seriously and do you want to know what you can do about it? The Consumer Association’s Advice Line will be happy to help you. The number of the Advice Line is 070-44545. Reachable from Monday to Friday from 08:30-18:00. Here you can ask all your questions about the complaints procedure and your right to choose another doctor or request a second opinion. For members of the Consumers’ Association, the advice is free.
Videos, leaflets and books
More and more videos about Tietze’s syndrome and costochondritis are becoming available. The association has its own YouTube channel.
Videos
We have collected several videos about Tietze and costochondritis for you.
Leaflets
Our association has had a leaflet produced. This is intended to briefly provide necessary information about Tietze syndrome and the Tietze Association, and is intended for patients, physicians and interested parties. You can view the leaflet below and distribute it to general practitioners, specialists, therapists, family, acquaintances and work colleagues, among others. You will then contribute to making the condition more widely known.
Books
‘Chronisch Tietze of costochondritis. Leer er maar mee leven’ is the name of the book commissioned by our association. The book shows that there are many challenges facing the patient with Tietze and/or costochondritis. Physical problems, anxiety, helplessness and experiences of misunderstanding can take their toll and lead to reduced well-being. Paperback is out of print. However, you can download the ebook version via this link.
Information magazine about Tietze. Enlightening information on research, treatments and consequences. A collection of practical solutions, carefully compiled by experts, that you won’t find anywhere else. No cumbersome explanations, but clear and direct, with applicable solutions. New members receive the information magazine upon registration.
Important addresses
Below are some important addresses regarding pain and pain management. In the course of time, the association has collected or received these. It is a selection, not intended to be complete.

