We are the platform for people with Tietze syndrome and costochondritis. The place where knowledge and experiences with Tietze can be exchanged and where fellow sufferers can meet each other, both literally and figuratively. Medical professionals can read up on the condition here. Our objective is to support and represent the interests of patients with the chronic form of Tietze syndrome and/or costochondritis. Furthermore, everything that is directly or indirectly related to this issue or that may be conducive to it in the broadest sense of the word.
What activities do we organise for you, what do we do and what can we do for you:
Contact with peers
- Newsletters and stories from fellow members via a private members’ site
- Regional and national activities for members to connect with fellow members
- Annual national contact days with lectures by experts
- Private Facebook site for members and public Facebook page for non-members
- E-book with stories from fellow members available
Provision of information
- General information via public website
- Digital newsletter via website and Facebook
- Information magazine with lots of tips
- Brochure with information about the condition and labour participation
- Specific information for members via a private section on our website
- Online help via an online e-learning module for reintegration into the labour market
Medical and Advocacy
- Participation in umbrella organisations, including the Reumafonds and Ieder(In)
- Collaboration with other patient organisations in the field of labour participation
- Promotion of expertise among medical and paramedical professionals
- Participation in medical research from a patient perspective
- Development of treatment protocols in collaboration with medical and paramedical professionals
- Giving lectures to healthcare providers and medical students
Members only
This box hides content that is only available to members. Not a member yet? You can sign up for membership using the button below. Membership is valid for 12 months and gives you immediate access to this and other content. Already a member? Use the link to log in to your account.
