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Contact with other fellow sufferers and the exchange of experiences can help and give comfort. After all, you are not the only one with this disorder.

  • The Tietze Association has its own shielded group on Facebook.
  • Every year in spring the Tietze Association organizes the general meeting for members somewhere in the Netherlands, which we combine with some fun activity.
  • Every year we organise a weekend, where there is time for exchange between members,  fun activities, and information. We always stay at a nice  and relaxing location where we can also enjoy some culinary extravagance.



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