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Contact with other fellow sufferers and the exchange of experiences can help and give comfort. After all, you are not the only one with this disorder.

To  make contact with fellow sufferers, we can offer our members the following facilities:

  • On the first Monday of the month between 19.00 and 20.30 hrs we have our own shielded groupchat between members through intranet. Every month the chat will have a special theme, but just casual chatting is also allowed.
  • Chatting outside of the times mentioned above is also available between members. This makes chatting with fellow sufferers very easy.
  • The Tietze Association has its own shielded group on Facebook.
  • Every year in spring the Tietze Association organizes the general meeting for members somewhere in the Netherlands, which we combine with some fun activity.
  • Every year we organise a weekend, where there is time for exchange between members,  fun activities, and information. We always stay at a nice  and relaxing location where we can also enjoy some culinary extravagance.


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